Technical Assistance

ATHN 9: Pasteurized plasma-derived VWF/FVIII concentrate: Long-term prophylaxis in von Willebrand disease

Author(s):

Robert F. Sidonio, Jr., Tammuella Chrisentery-Singleton, Martin Chandler, Nabil Daoud, Carol Fedor, Vidhi Desai, Tyler Dally, Hiren Shah, Angela Weyand
Publication:
ISTH Poster
Date:
June 21, 2025
Topics:
Von Willebrand Disease, Prophylaxis

ATHN Transcends INHIBIT Module – Prospective Study of Inhibitors and Biomarkers in Previously Untreated Hemophilia A Patients

Author(s):

Nicoletta Machin, Margaret Ragni, Tammuella Chrisentery-Singleton, Jonathan Schwartz, Katherine Pratt
Publication:
ISTH Poster
Date:
June 21, 2025
Topics:
Hemophilia, Inhibitors

Unveiling the Unmet Needs in People with Glanzmann Thrombasthenia: Insights from the ATHN Transcends: GT Module Natural History Study

Author(s):

Divyaswathi Citla-Sridhar, Tammuella Chrisentery-Singleton, Jigar Amin, Andrew Law, Sanjay Ahuja, Michael Recht, Jonathan Schwartz, Meera Chitlur
Publication:
ISTH Poster
Date:
June 21, 2025
Topics:
Rare Disease, Blood Disorder, Glanzmann

ATHN 10: Novel Variants in Fibrinogen Genes using a Customized 31-Gene Next-Generation Sequencing Panel

Author(s):

Authors: Diane J. Nugent, Shirley Williams, Christina Ashburner, Nicole Crook, Martin Chandler, Tammuella Chrisentery-Singleton, Suchitra Acharya, Amy Shapiro
Publication:
ISTH Poster
Date:
June 21, 2025
Topics:
Rare Disease, Genetics

ATHN 10: Modifying Variants That Alone are Sufficient to Reduce Factor VII Levels

Author(s):

Diane J. Nugent, Shirley Williams, Christina Ashburner, Nicole Crook, Martin Chandler, Tammuella Chrisentery-Singleton, Suchitra Acharya, Amy Shapiro
Publication:
ISTH Poster
Date:
June 21, 2025
Topics:
Rare Disease, Genetics

ATHN Transcends: A Natural History Study of Bleeding Symptoms and Treatment Outcomes in Patients with Glanzmann Thrombasthenia – The Pakistan Site Experience

Author(s):

Tahira Zafar, Divyaswathi Citla-Sridhar, Jigar Amin, Tammuella Chrisentery-Singleton, Shelby Domino, Hina Fatima, Catherine Rea, Michael Recht, Lubna Zafar, Meera Chitlur
Publication:
WFH Poster
Date:
April 23, 2025
Topics:
Rare Disease, Blood Disorder, Glanzmann

The Iron Ladies: Prevalence and Risk Factors of Iron Deficiency in Females With Bleeding Disorders

Author(s):

Meghan McCormick, Jianzhong Hu, Martin Chandler, Matthew Manuel, Tammuella Chrisentery-Singleton, Margaret V. Ragni
Publication:
Haemophilia
Date:
March 18, 2025
Topics:
Bleeding Disorders, Women, Females

American Thrombosis and Hemostasis Network: National Bleeding Disorders Foundation Data Commons: Better Together

Author(s):

Tammuella Chrisentery-Singleton, Philip M. Gattone, Christine M. Gerber, Kevin D. Mills, Moses E. Miles III, Dawn Rotellini, Maria E. Santaella, Leonard A. Valentino, Crystal Watson, Michael Recht
Publication:
Haemophilia, Letter to Editor
Date:
February 21, 2025
Topics:
Hemophilia, Collaboration, Data

Bleed treatment with eptacog beta (rFVIIa) results in a low incidence of rebleeding in adult and adolescent patients with hemophilia A or B with inhibitors

Author(s):

Amy Dunn, Yesim Dargaud, Yasmina Abajas, Manuel Carcao, Giancarlo Castaman, Adam Giermasz, Cédric Hermans, Victor Jimenez-Yuste, Magdalena Lewandowska, Johnny Mahlangu, Shannon Meeks, Wolfgang Miesbach, Michael Recht, Vanessa Salinas-Luna, Tammuella Chrisentery-Singleton, Daniel Bonzo, Ian Mitchell, Thomas A. Wilkinson, Guy Young
Publication:
Haemophilia
Date:
December 15, 2024
Topics:
Bleeding disorders, hemophilia, inhibitors

Effectiveness of Damoctocog Alfa Pegol to Treat Patients With Hemophilia A Enrolled in the ATHNdataset

Author(s):

Martin Chandler, Thomas Moulton, Lena Charafi, Jessica Charlet, Michael Recht.
Publication:
European Journal of Haematology
Date:
November 18, 2024
Topics:
Hemophilia A, prophylaxis, ATHNdataset

Continuous Prophylaxis with Recombinant Von Willebrand Factor in People with Clinically Severe Congenital Types 1 and 2 Von Willebrand Disease in a Real-World Setting: Interim Analysis of ATHN 9, a Natural History Study for People with Severe VWD

Author(s):

Robert F Sidonio, Jr., Angela C Weyand, Tammuella Chrisentery-Singleton, Martin Chandler, Carol Fedor, Priscilla Driscoll-Shempp, Michelle Kirby, Jorge Caicedo
Publication:
Blood
Date:
November 5, 2024
Topics:
VWD, Von Willebrand Disease

ATHN 10 – Novel Variants in Persons with Rare Coagulation Disorders across Hemophilia Treatment Centers in the United States

Author(s):

Diane J. Nugent, Shirley Williams, Suchitra Acharya, Christina Ashburner, Vinod V. Balasa, Nidhi Bhatt, Martin Chandler, Tammuella Chrisentery-Singleton, Nicole Crook, Hilda Ding, Carol Fedor, Ravitharan Krishnadasan, Jonathan C. Roberts, Beverly Schaefer, Ayesha Zia, Amy D. Shapiro
Publication:
Blood
Date:
November 5, 2024
Topics:
Rare Disease, Genetics

Understanding the real-world healthcare resource utilization and costs of severe hemophilia A without inhibitors among adults treated with long-term prophylaxis in the United States by payer type

Author(s):

Sandra Santos, Jarren Santos, David Hinds, Jonathan Schwartz, Joshua Sammon, Ruthel Jarvis Goss, Nabil Daoud, Tammuella Chrisentery-Singleton
Publication:
Academy of Managed Care Pharmacy (ACMP) Nexus 2024
Date:
October 14-17, 2024
Topics:
hemophilia A, inhibitors, prophylaxis, ATHNdataset

Real-World Use of Recombinant Factor IX Fusion Protein in Previously Untreated Patients with Congenital Hemophilia B from the ATHN 8 Study

Author(s):

Courtney Thornburg, Martin Chandler, Lynn Malec, Matthew Manuel, Carrie O’Neill, Michael Recht, Elizabeth Taggart, Hongseok Kim, Vindhi Desai, Hiren Shah, Shannon Carpenter
Publication:
Thrombosis & Hemostasis Summit of North America (THSNA) 2024
Date:
April 4-6, 2024
Topics:
recombinant factor IX, previously untreated patients, PUPs, hemophilia B, ATHN 8

Insight into ATHN 16: Treatment of Bleeding Events in Patients with Congenital Hemophilia A or B with Inhibitors to Evaluate the Safety of Coagulation Factor VIIa (recombinant)-jncw

Author(s):

Tammuella Chrisentery-Singleton, Suchitra Acharya, Sanjay Ahuja, Lauren Amos, Daniel Bonzo, Meera Chitlur, Miguel Escobar, Ahley Eason, Carol Fedor, Shveta Gupta, Philip Kurikose, Emmanuelle Lagrue, Matthew Manuel, Sonia Nasr, Sharon Pennington, Rajiv Pruthi, Doris Quon, Michael Recht, Mark Reding, Spencer Sullivan, Allison Wheeler
Publication:
Thrombosis & Hemostasis Summit of North America (THSNA) 2024
Date:
April 4-6, 2024
Topics:
ATHN 16, hemophilia A, hemophilia B, inhibitors, factor VIIa (recombinant)-jncw

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