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Real-world data on patients with hemophilia A patients with inhibitors switching to either BAY 94-9027 or BAY 81-8973 in the ATHNdataset

Author(s):

Martin Chandler, Jessica Charlet, Thomas Moulton, Michael Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia A, inhibitors, switching
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Designing the Ryplazim® (PLASMINOGEN, HUMAN-tvmh) Arm of ATHN Transcends: Safety and Effectiveness in People with Plasminogen Deficiency

Author(s):

Lynn Malec, Rebecca Bialas, Amy Shapiro, Carrie O’Neill, Karen Thibaudeau, Elaine Wagner, Erin Weigel, Michael Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia, safety
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Designing the Efanesoctocog Alfa Module of ATHN Transcends: Safety in Previously Untreated Patients

Author(s):

Lynn Malec, Courtney Thornburg, Shannon Carpenter, Carrie O’Neill, Mike Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia, safety
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Preliminary Analysis of ATHN 16: Real-World Safety of Eptacog Beta

Author(s):

Lauren Amos, Daniel Bonzo, Ashley Eason, Miguel Escobar, Christine Knoll, Philip Kurikose, Emmanuelle Lagrue, Sonia Nasr, Michael Recht, Spencer Sullivan, Doris Quon, Mark Reding
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia, Safety
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Hereditary Antithrombin Deficiency Pilot Project Registry from the American Thrombosis and Hemostasis Network (ATHN)

Author(s):

Maria DeSancho, Erin Suvar, Jonathan Roberts, Jarren Santos, Michael Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
thrombosis, antithrombin
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ATHN-11: Observational Study of Long-Term Outcomes of Liver Transplantation

Author(s):

Maggie Ragni, Brian Hu, Jessica Callis, Matt Manuel, Jarren Santos, Ken friedman, Peter Kouides, P. Kurikose, A. Leavitt, M. Lim, N. Machin, M. Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia, Liver Transplant
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Emicizumab prophylaxis in people with hemophilia A aged ≥50 years with comorbidities: experience from the ATHN 7 hemophilia natural history study

Author(s):

Tyler Buckner, Mike Recht, Lucy Lee, Paul Morton, Nabil Daoud
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia, comorbidities
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Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities for ultra-rare inherited bleeding disorders

Author(s):

Diane Nugent, Suchitra S Acharya, Kimberly J Baumann, Camille Bedrosian, Rebeca Bialas, Kai Brown, Deya Corzo, Amar Haidar, Catherine P M Hayward, Peter Marks, Marzia Menegatti, Margaret E Miller, Kate Nammacher, Roberta Palla, Skye Peltier, Rajiv K Pruthi, Michael Recht, Benny Sørensen, Michael Tarantino, Alisa S Wolberg, Amy D Shapiro
Publication:
Expert Reviews in Hematology
Date:
March 1, 2023
Topics:
Rare Disease, Research
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A Retrospective Analysis of the American Thrombosis and Hemostasis Network Dataset Describing Outcomes of Dental Extractions in Persons with Hemophilia

Author(s):

Heather Messenger, Roshni Kulkarni, Michael Recht, and Chunla He
Publication:
Journal of Clinical Medicine
Date:
Februar 24, 2023
Topics:
Hemophilia, Dental Extraction
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Gene Therapy with Etranacogene Dezaparvovec for Hemophilia B

Author(s):

Steven W Pipe, Frank W G Leebeek, Michael Recht, Nigel S Key, Giancarlo Castaman, Wolfgang Miesbach, Susan Lattimore, Kathelijne Peerlinck, Paul Van der Valk, Michiel Coppens, Peter Kampmann, Karina Meijer, Niamh O’Connell, K John Pasi, Daniel P Hart, Rashid Kazmi, Jan Astermark, Cedric R J R Hermans, Robert Klamroth, Richard Lemons, Nathan Visweshwar, Annette von Drygalski, Guy Young, Shelley E Crary, Miguel Escobar, Esteban Gomez, Rebecca Kruse-Jarres, Doris V Quon, Emily Symington, Michael Wang, Allison P Wheeler, Robert Gut, Ying P Liu, Ricardo E Dolmetsch, David L Cooper, Yanyan Li, Brahm Goldstein, Paul E Monahan
Publication:
New England Journal of Medicine
Date:
February 23, 2023
Topics:
Hemophilia B, Gene Therapy, Etranacogene Dezaparvovec
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Surgeries and procedures in people with haemophilia A on emicizumab prophylaxis, ATHN 7

Author(s):

Tyler Buckner, Shannon Carpenter, Nabil Daoud, Lucy Lee, Thomas McLean, Paul Morton, Michael Recht
Publication:
European Association for Haemophilia and Allied Disorders (EAHAD) Annual Meeting 2023
Date:
February 7-10, 2023
Topics:
Hemophilia, Treatments, Safety
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Designing ATHN 7: Safety, effectiveness and practice of treatment of people with haemophilia in the United States through a natural history cohort study

Author(s):

Tyler W Buckner, Nabil Daoud, Moses Miles, Carrie O’Neill, Crystal Watson, Michael Recht
Publication:
The Journal of Haemophilia Practice
Date:
January 2, 2023
Topics:
ATHN 7, hemophilia treatment
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Mortality Trends Among Persons with Hemophilia in the United States, 2000-2021

Author(s):

Amanda B Payne, Binh Le, Meredith A Oakley, Brandi Dupervil, Marilyn J Manco-Johnson, Anjali Sharathkumar, Stacy E Croteau, Rajiv K Pruthi, Skye J Peltier, Norma Wolf, Roshni Kulkarni, Vanessa R Byams
Publication:
64th ASH Annual Meeting and Exposition
Date:
December 10, 2022
Topics:
Mortality, hemophilia
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Direct Oral Anticoagulants in Pediatric Venous Thromboembolism: Experience in Specialized Pediatric Hemostasis Centers in the United States

Author(s):

Fernando Corrales-Medina, Leslie Raffini, Michael Recht, Jarren Santos, Courtney D Thornburg, Jennifer Davila, ATHN 15 Study Investigators
Publication:
Research and Practice in Thrombosis and Haemostasis
Date:
November 25, 2022
Topics:
Pediatric, Real-World Use, Direct Oral Anticoagulants
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Quality of Life in Patients with Clinically Severe Von Willebrand Disease: Interim Analysis of ATHN 9: A Natural History Study for People with Severe Von Willebrand Disease (VWD)

Author(s):

Angela C Weyand, Martin Chandler, Carol Fedor, Michael Recht, Robert F Sidonio Jr
Publication:
Blood
Date:
November 15, 2022
Topics:
VWD
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