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Assessment of access to factor VIII and factor IX to persons with hemophilia during emergencies: a quality improvement study

Author(s):

Divyaswathi Citla-Sridhar, Kara Burge, Jean Aroom, Justine Kaplan, Shelley Crary
Publication:
Thrombosis & Hemostasis Summit of North America (THSNA) 2024
Date:
April 4-6, 2024
Topics:
hemophilia, quality improvement, factor VII, factor IX
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Race and ethnicity and the success of immune tolerance induction among people with severe haemophilia A in the United States

Author(s):

Stacey A. Fedwa, Christine L. Kempton
Publication:
Haemophilia
Date:
March 10, 2024
Topics:
Hemophilia, ITI
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Observational cohort study of long-term outcomes of liver transplantation in haemophilia

Author(s):

Margaret V Ragni, Jessica Callis, Nabil Daoud, Brian Hu, Matthew Manuel, Jarren Santos, Jonathan Schwartz, Kenneth D Friedman, Peter Kouides, Philia Kuriakose, Andrew D Leavitt, Ming Y Lim, Nicoletta Machin, Michael Recht, Tammuella Chrisentery-Singleton
Publication:
Haemophilia
Date:
December 18, 2023
Topics:
gene therapy, haemophilia, liver transplantation, ATHNdataset
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Real-World Data on Hemophilia A Patients Transitioning from BAY 81-8973 to BAY 94-9027 and from BAY 14-2222 To BAY 81-8973 and then to BAY 94-9027 in the ATHNdataset

Author(s):

Martin Chandler, Jessica Charlet, Thomas Moulton, Michael Recht
Publication:
Blood
Date:
November 28, 2023
Topics:
ATHNdataset, patients with hemophilia A, BAY 94-9027, BAY 81-8973, BAY 14-2222
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Real-World Use of Recombinant Von Willebrand Factor in People with Clinically Severe Congenital Von Willebrand Disease: Interim Analysis of ATHN 9, A Natural History Study for People with Severe VWD

Author(s):

Robert F Sidonio, Angela C Weyand, Tammuella Chrisentery-Singleton, Martin Chandler, Haduwa Momoh, Priscilla Driscoll-Shempp, Bethany Jones, Natalia Nieto, Jorge Caicedo
Publication:
Blood
Date:
November 28, 2023
Topics:
von Willebrand disease, ATHN 9, recombinant von Willebrand factor (rVWF)
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Quality of Life in Emicizumab-treated People with Hemophilia A in the ATHN 7 Hemophilia Natural History Study – An Assessment of Baseline PROMIS®-29 Scores

Author(s):

Tyler W Buckner, Nabil Daoud, Lucy Lee, Jonathan Schwartz, Karina Raimundo, Michael Recht
Publication:
Blood
Date:
November 28, 2023
Topics:
hemophilia A, emicizumab, ATHN 7
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Defining the Impact of Immune Tolerance Induction on Clinically Relevant Outcomes in a US Cohort

Author(s):

Christine L. Kempton, Stacey Fedewa
Publication:
Blood Advances
Date:
January 2024
Topics:
ITI, Hemophilia
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Bleeding disorder of unknown cause & unclassified bleeding disorders at US hemophilia treatment centers

Author(s):

Callie Berkowitz, Kristi Kirkland, Alice Ma, Nigel S. Key
Publication:
Research and Practice in Thrombosis and Haemostasis
Date:
January 2024
Topics:
Bleeding, Hemophilia
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Risk Factors for Joint Bleeding in Severe Hemophilia A and B: Analysis of the Community Counts Longitudinal Surveillance Cohort

Author(s):

Marilyn Manco-Johnson, Suchitra Acharya, Sanjay Ahuja, Meera Chitlur, Divyaswathi Citla Sridhar, Stacey Fedewa, Daniel Isaac, Roshni Kulkarni, Laura Schieve, Anjali A. Sharathkumar, Binh Le, Mike Soucie
Publication:
Blood
Date:
November 2023
Topics:
Bleeding, Hemophilia
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ATHN Transcends Natural History Cohort Study of Bleeding Symptoms and Treatment Outcomes in Patients with Glanzmann Thrombasthenia

Author(s):

Tammuella Chrisentery-Singleton, Carrie O’Neill, Catherine Rea, Jigar Amin, Michael Recht
Publication:
Blood
Date:
November 2, 2023
Topics:
Glanzmann thrombasthenia, bleeding disorders
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Characteristics Associated with the Success of Immune Tolerance Induction among Patients with Severe Hemophilia A in the United States

Author(s):

Stacey Fedewa, Amanda B. Payne, Lorraine Cafuir, Duc Quang Tran, Ana G. Antun, Christine Kempton
Publication:
Blood
Date:
Blood
Topics:
Hemophilia, ITI
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Race, ethnicity, and immune tolerance induction in hemophilia A in the United States

Author(s):

Christine L. Kempton, Amanda B. Payne, Stacey A. Fedewa
Publication:
Research and Practice in Thrombosis and Haemostasis
Date:
November 2023
Topics:
Hemophilia, ITI
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First US Rare Bleeding Disorder Genotype-Phenotype Registry (ATHN 10) Discovers Many Individuals with Both Novel and Multiple Variants Using a Customized 30-Gene Next-Generation Sequencing Panel

Author(s):

Diane Nugent, Shirley Williams, Nicole Crook, Christina Ashburner, Martin Chandler, Michael Recht, Haduwa Momoh, Amy Shapiro
Publication:
ISTH Oral Presentation
Date:
June 28, 2023
Topics:
Rare blood disorders, genetics
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Real-world data on patients with hemophilia A switching to either BAY 94-9027 or BAY 81-8973 from emicizumab using the ATHNdataset

Author(s):

Martin Chandler, Jessica Charlet, Thomas Mounton, Michael Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia A, switching
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Joint range of motion findings among female patients with Hemophilia A from the ATHNdataset

Author(s):

Martin Chandler, Lena Charafi, Thomas Moulton, Michael Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia A, range of motion, joints
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