NHPCC

National Hemophilia Program Coordinating Center (NHPCC) Reference Hub Launched

Author(s):

NHPCC
Publication:
Reference Hub launched to browse and share a variety of resources developed by the NHPCC, regional hemophilia networks, and other partners.
Date:
August 20, 2022
Topics:
NHPCC, HRSA, grant, coordinating center, reference, resource, sharing, hub, best practices

Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States

Author(s):

Rebecca A Malouin, Laurel McKernan, Ann Forsberg, Dunlei Cheng, John Drake, Kathryn McLaughlin, Marisela Trujillo
Publication:
Maternal and Child Health Journal; 22(9): 1240-1246
Date:
September 2018
Topics:
Hemophilia, 340B

New Hemophilia Treatment Center Staff Orientation: A Standardized Approach

Author(s):

Karen Droze, Jessica Packman, Ann Forsberg, Regina Butler, Travis Tussing
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
HTC, Staff

Practice Characteristics of Genetic Counselors Serving the North American Bleeding Disorders Community

Author(s):

Rebecca Malouin, Ann Forsberg, Meadow Heiman, Kristin Paulyson-Nuñez, Katie Bergstrom, NHPCC Genetics Working Group
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
Genetics, Bleeding Disorders

National Survey of the 340B Drug Pricing Program: Quantitative Evaluation of the Services Provided by the U.S. Hemophilia Treatment Centers

Author(s):

Marisela Trujillo, Ann Forsberg, John Drake, Dunlei Cheng, Kathryn McLaughlin, Laurel McKernan
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
Hemophila, 340B

National Needs Assessment of Patients Treated at the United States Federally Funded Hemophilia Treatment Centers

Author(s):

Regina Butler, Allen Cheadle, Diane Aschman, B Riske, S Senter, Kathryn McLaughlin, Greg Young, Sanjay Ahuja, Ann Forsberg
Publication:
Date:
October 30, 2015
Topics:
Needs Assessment, Hemophilia

Expanding Telemedicine to Medical Homes for Comprehensive Care Delivery for Persons with Hemostatic Disorders: A Pilot Study of the American Thrombosis and Hemostasis Network (ATHN)/National Hemophilia Program Coordinating Center (NHPCC)

Author(s):

Roshni Kulkarni, Rebecca Malouin, C Vallad-Hix, L Carlson, M Bird, Diane Aschman, Ann Forsberg, Z Trost, R Greenhoe
Publication:
International Society of Thrombosis and Haemostasis (ISTH) 2015 Congress, Toronto, Canada
Date:
June 23, 2015
Topics:
Telemedicine, Bleeding Disorders

Technical Assistance Needs to Support Care Delivery for Patients with Bleeding Disorders: Findings from a National Survey of Hemophilia Treatment Centers

Author(s):

JD Bellinger, Neeraj Iyer, A Martin, Diane Aschman, Ann Forsberg
Publication:
Academy Health
Date:
2014
Topics:
Technical Assistance, Bleeding Disorders

Patients’ Perceptions of Care at the US Federally Funded Hemophilia Treatment Centers

Author(s):

Ann Forsberg, Regina Butler, Susan Cutter, Anjali Sharathkumar, Judith R Baker, Sanjay Ahuja, Diane J Aschman, Allen Cheadle
Publication:
World Federation of Hemophilia 2014 World Congress, Melbourne, Australia
Date:
May 11-15, 2014
Topics:
Patient Perception, Hemophilia

Hemophilia and Von Willebrand Disease Patients’ Perceptions of Care at US Hemophilia Treatment Centers

Author(s):

Diane J Aschman, Amy Shapiro, Regina Butler, Anjali Sharathkumar, Mark Skinner, Ann Forsberg
Publication:
Haemophilia; 2 (Suppl.2), pg. 13. Based upon presentation at the 7th Annual Congress of the European Association of Haemophilia and Allied Disorders, Brussels, Belgium, February 26-28, 2014
Date:
February 26-28, 2014
Topics:
Hemophilia, VWD

Survey of the Support Needs of the HTC Staff by National Hemophilia Program Coordinating Center

Author(s):

Ann Forsberg, Regina Butler, Judith Baker, Kathryn McLaughlin, Donna Oldfield, Linda Price, Diane Aschman
Publication:
National Hemophilia Foundation Annual Meeting, Anaheim, CA
Date:
October 3-5, 2013
Topics:
Patient Needs, Hemophilia

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