NHPCC

Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States

Authors:
Malouin, R., McKernan, L., Forsberg, A., Cheng, D., Drake, J., McLaughlin, K., Trujillo, M.
Publication:
Maternal and Child Health Journal; 22(9): 1240-1246
Date:
September 2018
Topics:
Hemophila, 340B

National Hemophilia Program Coordinating Center (NHPCC)

Authors:
Publication:
Re-competed and award for Project Period (#UC8MC24079-06)
Date:
June 1, 2017 to May 31, 2022
Topics:
NHPCC

New Hemophilia Treatment Center Staff Orientation: A Standardized Approach

Authors:
Droze, K., Packman, J., Forsberg, A., Butler, R., Tussing, T.
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
HTC, Staff

Practice Characteristics of Genetic Counselors Serving the North American Bleeding Disorders Community

Authors:
Malouin, R., Bergstrom, K., Heiman, M., Paulyson Nunez, K., Forsberg, A., NHPCC Genetics Working Group.
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
Genetics, Bleeding Disorders

National Survey of the 340B Drug Pricing Program: Quantitative Evaluation of the Services Provided by the U.S. Hemophilia Treatment Centers

Authors:
Trujillo, M., Forsberg, A., Drake, J., Cheng, D., McLaughlin, K., McKernan, L.
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
Hemophila, 340B

National Needs Assessment of Patients Treated at the United States Federally Funded Hemophilia Treatment Centers

Authors:
Butler, R., Cheadle, A., Aschman, D., Riske, B., Senter, S., McLaughlin, K., Young, G., Ahuja, S., Forsberg, A.
Publication:
Date:
October 30, 2015
Topics:
Needs Assessment, Hemophilia

Expanding Telemedicine to Medical Homes for Comprehensive Care Delivery for Persons with Hemostatic Disorders: A Pilot Study of the American Thrombosis and Hemostasis Network (ATHN)/National Hemophilia Program Coordinating Center (NHPCC)

Authors:
Kulkarni, R., Malouin, R., Vallad-Hix, C., Carlson, L., Bird, M., Aschman, D., Forsberg, A., Trost, Z., Greenhoe, R.
Publication:
International Society of Thrombosis and Haemostasis (ISTH) 2015 Congress, Toronto, Canada
Date:
June 23, 2015
Topics:
Telemedicine, Bleeding Disorders

Technical Assistance Needs to Support Care Delivery for Patients with Bleeding Disorders: Findings from a National Survey of Hemophilia Treatment Centers

Authors:
Bellinger, JD., Iyer, MR., Martin, A., Aschman, D., Forsberg, A.
Publication:
Academy Health
Date:
2014
Topics:
Technical Assistance, Bleeding Disorders

Patients’ Perceptions of Care at the US Federally Funded Hemophilia Treatment Centers

Authors:
Forsberg, A., Butler, R., Cutter, S., Curtis, R., Shapiro, A., Sharathkumar, A., Aschman, D.
Publication:
World Federation of Hemophilia 2014 World Congress, Melbourne, Australia
Date:
May 11-15, 2014
Topics:
Patient Perception, Hemophilia

Hemophilia and Von Willebrand Disease Patients’ Perceptions of Care at US Hemophilia Treatment Centers

Authors:
Aschman, D., Shapiro, A., Butler, R., Sharathkumar, A., Skinner, M., Forsberg, A.
Publication:
Haemophilia; 2 (Suppl.2), pg. 13. Based upon presentation at the 7th Annual Congress of the European Association of Haemophilia and Allied Disorders, Brussels, Belgium, February 26-28, 2014
Date: