ATHN CV

Enter your search criteria to find works by title, author, publication, keyword(s), or date.

Back

NHPCC

Assessment of access to factor VIII and factor IX to persons with hemophilia during emergencies: a quality improvement study

Author(s):

Divyaswathi Citla-Sridhar, Kara Burge, Jean Aroom, Justine Kaplan, Shelley Crary
Publication:
Thrombosis & Hemostasis Summit of North America (THSNA) 2024
Date:
April 4-6, 2024
Topics:
hemophilia, quality improvement, factor VII, factor IX
Visit Publication

National Hemophilia Program Coordinating Center (NHPCC) Reference Hub Launched

Author(s):

NHPCC
Publication:
Reference Hub launched to browse and share a variety of resources developed by the NHPCC, regional hemophilia networks, and other partners.
Date:
August 20, 2022
Topics:
NHPCC, HRSA, grant, coordinating center, reference, resource, sharing, hub, best practices
Visit Publication

Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States

Author(s):

Rebecca A Malouin, Laurel McKernan, Ann Forsberg, Dunlei Cheng, John Drake, Kathryn McLaughlin, Marisela Trujillo
Publication:
Maternal and Child Health Journal; 22(9): 1240-1246
Date:
September 2018
Topics:
Hemophilia, 340B
Visit Publication

New Hemophilia Treatment Center Staff Orientation: A Standardized Approach

Author(s):

Karen Droze, Jessica Packman, Ann Forsberg, Regina Butler, Travis Tussing
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
HTC, Staff
Visit Publication

Practice Characteristics of Genetic Counselors Serving the North American Bleeding Disorders Community

Author(s):

Rebecca Malouin, Ann Forsberg, Meadow Heiman, Kristin Paulyson-Nuñez, Katie Bergstrom, NHPCC Genetics Working Group
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
Genetics, Bleeding Disorders
Visit Publication

National Survey of the 340B Drug Pricing Program: Quantitative Evaluation of the Services Provided by the U.S. Hemophilia Treatment Centers

Author(s):

Marisela Trujillo, Ann Forsberg, John Drake, Dunlei Cheng, Kathryn McLaughlin, Laurel McKernan
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
Hemophila, 340B
Visit Publication

National Needs Assessment of Patients Treated at the United States Federally Funded Hemophilia Treatment Centers

Author(s):

Regina Butler, Allen Cheadle, Diane Aschman, B Riske, S Senter, Kathryn McLaughlin, Greg Young, Sanjay Ahuja, Ann Forsberg
Publication:
Date:
October 30, 2015
Topics:
Needs Assessment, Hemophilia
Visit Publication

Expanding Telemedicine to Medical Homes for Comprehensive Care Delivery for Persons with Hemostatic Disorders: A Pilot Study of the American Thrombosis and Hemostasis Network (ATHN)/National Hemophilia Program Coordinating Center (NHPCC)

Author(s):

Roshni Kulkarni, Rebecca Malouin, C Vallad-Hix, L Carlson, M Bird, Diane Aschman, Ann Forsberg, Z Trost, R Greenhoe
Publication:
International Society of Thrombosis and Haemostasis (ISTH) 2015 Congress, Toronto, Canada
Date:
June 23, 2015
Topics:
Telemedicine, Bleeding Disorders
Visit Publication

Technical Assistance Needs to Support Care Delivery for Patients with Bleeding Disorders: Findings from a National Survey of Hemophilia Treatment Centers

Author(s):

JD Bellinger, Neeraj Iyer, A Martin, Diane Aschman, Ann Forsberg
Publication:
Academy Health
Date:
2014
Topics:
Technical Assistance, Bleeding Disorders
Visit Publication

Patients’ Perceptions of Care at the US Federally Funded Hemophilia Treatment Centers

Author(s):

Ann Forsberg, Regina Butler, Susan Cutter, Anjali Sharathkumar, Judith R Baker, Sanjay Ahuja, Diane J Aschman, Allen Cheadle
Publication:
World Federation of Hemophilia 2014 World Congress, Melbourne, Australia
Date:
May 11-15, 2014
Topics:
Patient Perception, Hemophilia
Visit Publication

Hemophilia and Von Willebrand Disease Patients’ Perceptions of Care at US Hemophilia Treatment Centers

Author(s):

Diane J Aschman, Amy Shapiro, Regina Butler, Anjali Sharathkumar, Mark Skinner, Ann Forsberg
Publication:
Haemophilia; 2 (Suppl.2), pg. 13. Based upon presentation at the 7th Annual Congress of the European Association of Haemophilia and Allied Disorders, Brussels, Belgium, February 26-28, 2014
Date:
February 26-28, 2014
Topics:
Hemophilia, VWD
Visit Publication

Survey of the Support Needs of the HTC Staff by National Hemophilia Program Coordinating Center

Author(s):

Ann Forsberg, Regina Butler, Judith Baker, Kathryn McLaughlin, Donna Oldfield, Linda Price, Diane Aschman
Publication:
National Hemophilia Foundation Annual Meeting, Anaheim, CA
Date:
October 3-5, 2013
Topics:
Patient Needs, Hemophilia
Visit Publication

Can’t find what you’re looking for?
Please contact support@athn.org for assistance.