Community Counts

Clinical and treatment characteristics of infants and toddlers less than 2 years of age with hemophilia

Author(s):

Jennifer H. Han, Brandi Dupervil, Arash Mahajerin, Roshni Kulkarni, Marilyn Manco-Johnson, Courtney Thornburg
Publication:
Blood Advances
Date:
June 11, 2024
Topics:
Hemophilia

Race and ethnicity and the success of immune tolerance induction among people with severe haemophilia A in the United States

Author(s):

Stacey A. Fedwa, Christine L. Kempton
Publication:
Haemophilia
Date:
March 10, 2024
Topics:
Hemophilia, ITI

Defining the Impact of Immune Tolerance Induction on Clinically Relevant Outcomes in a US Cohort

Author(s):

Christine L. Kempton, Stacey Fedewa
Publication:
Blood Advances
Date:
January 2024
Topics:
ITI, Hemophilia

Bleeding disorder of unknown cause & unclassified bleeding disorders at US hemophilia treatment centers

Author(s):

Callie Berkowitz, Kristi Kirkland, Alice Ma, Nigel S. Key
Publication:
Research and Practice in Thrombosis and Haemostasis
Date:
January 2024
Topics:
Bleeding, Hemophilia

Risk Factors for Joint Bleeding in Severe Hemophilia A and B: Analysis of the Community Counts Longitudinal Surveillance Cohort

Author(s):

Marilyn Manco-Johnson, Suchitra Acharya, Sanjay Ahuja, Meera Chitlur, Divyaswathi Citla Sridhar, Stacey Fedewa, Daniel Isaac, Roshni Kulkarni, Laura Schieve, Anjali A. Sharathkumar, Binh Le, Mike Soucie
Publication:
Blood
Date:
November 2023
Topics:
Bleeding, Hemophilia

Characteristics Associated with the Success of Immune Tolerance Induction among Patients with Severe Hemophilia A in the United States

Author(s):

Stacey Fedewa, Amanda B. Payne, Lorraine Cafuir, Duc Quang Tran, Ana G. Antun, Christine Kempton
Publication:
Blood
Date:
Blood
Topics:
Hemophilia, ITI

Race, ethnicity, and immune tolerance induction in hemophilia A in the United States

Author(s):

Christine L. Kempton, Amanda B. Payne, Stacey A. Fedewa
Publication:
Research and Practice in Thrombosis and Haemostasis
Date:
November 2023
Topics:
Hemophilia, ITI

Mortality Trends Among Persons with Hemophilia in the United States, 2000-2021

Author(s):

Amanda B Payne, Binh Le, Meredith A Oakley, Brandi Dupervil, Marilyn J Manco-Johnson, Anjali Sharathkumar, Stacy E Croteau, Rajiv K Pruthi, Skye J Peltier, Norma Wolf, Roshni Kulkarni, Vanessa R Byams
Publication:
64th ASH Annual Meeting and Exposition
Date:
December 10, 2022
Topics:
Mortality, hemophilia

Clinical and Treatment Characteristics of Infants and Toddlers Less Than Two Years of Age with Hemophilia: A Report from the Community Counts Registry

Author(s):

Jennifer Han, Brandi Dupervil, Roshni Kulkarni, Arash Mahajerin, Courtney Thornburg
Publication:
Blood
Date:
November 15, 2022
Topics:
Community Counts, Bleeding Disorders, Infants, Toddlers

Bleeding Disorders in Women and Girls: State of the Science and CDC Collaborative Programs

Author(s):

Vanessa R Byams, Connie H Miller, Fiona M Bethea, Karon Abe, Christopher J Bean, Laura A Schieve
Publication:
Journal of Women’s Health
Date:
April 1, 2022
Topics:
Bleeding Disorders, Hemophilia, Von Willebrand Disease, Surveillance

Occurrence Rates of Inherited Bleeding Disorders Other Than Haemophilia and Von Willebrand Disease Among People Receiving Care in Specialized Treatment Centres in the United States

Author(s):

Connie H Miller, J Michael Soucie, Vanessa R Byams, Amanda B Payne, Karon Abe, Magdalena Lewandowska, Amy D Shapiro
Publication:
Haemophilia
Date:
March 4, 2022
Topics:
Hemophilia, Von Willebrand Disease

Women and Girls with Haemophilia Receiving Care at Specialized Haemophilia Treatment Centres in the United States

Author(s):

Connie H Miller, J Michael Soucie, Vanessa R Byams, Amanda B Payne, Robert F Sidonio Jr, Tyler W Buckner, Christopher J Bean
Publication:
Haemophilia
Date:
September 04, 2021
Topics:
Hemophilia

Characteristics, Complications, and Sites of Bleeding Among Infants and Toddlers Less than 2 Wears of Age with VWD

Author(s):

Brandi Dupervil, Karon Abe, Sarah H O’Brien, Meredith Oakley, Roshni Kulkarni, Courtney D Thornburg, Vanessa R Byams, J Michael Soucie
Publication:
Blood Advances
Date:
April 20, 2021
Topics:
Hemophilia, Von Willebrand Disease

Occurrence Rates of Von Willebrand Disease Among People Receiving Care in Specialized Treatment Centres in the United States

Author(s):

J Michael Soucie, Connie H Miller, Vanessa R Byams, Amanda B Payne, Karon Abe, Robert F Sidonio Jr, Peter A Kouides
Publication:
Haemophilia
Date:
March 29, 2021
Topics:
Hemophilia, Von Willebrand Disease

Public Health Surveillance for the Prevention of Complications of Bleeding and Clotting Disorders (Community Counts)

Author(s):

N/A
Publication:
Re-competed and awarded for Project Period (#1NU27DD000020)
Date:
September 30, 2020 to September 29, 2025
Topics:
Community Counts, Bleeding Disorders
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