Community Counts

Race and ethnicity and the success of immune tolerance induction among people with severe haemophilia A in the United States

Author(s):

Stacey A. Fedwa, Christine L. Kempton

Publication:

Haemophilia

Date:

March 10, 2024

Topics:

Hemophilia, ITI

Defining the Impact of Immune Tolerance Induction on Clinically Relevant Outcomes in a US Cohort

Author(s):

Christine L. Kempton, Stacey Fedewa

Publication:

Blood Advances

Date:

January 2024

Topics:

ITI, Hemophilia

Bleeding disorder of unknown cause & unclassified bleeding disorders at US hemophilia treatment centers

Author(s):

Callie Berkowitz, Kristi Kirkland, Alice Ma, Nigel S. Key

Publication:

Research and Practice in Thrombosis and Haemostasis

Date:

January 2024

Topics:

Bleeding, Hemophilia

Risk Factors for Joint Bleeding in Severe Hemophilia A and B: Analysis of the Community Counts Longitudinal Surveillance Cohort

Author(s):

Marilyn Manco-Johnson, Suchitra Acharya, Sanjay Ahuja, Meera Chitlur, Divyaswathi Citla Sridhar, Stacey Fedewa, Daniel Isaac, Roshni Kulkarni, Laura Schieve, Anjali A. Sharathkumar, Binh Le, Mike Soucie

Publication:

Blood

Date:

November 2023

Topics:

Bleeding, Hemophilia

Characteristics Associated with the Success of Immune Tolerance Induction among Patients with Severe Hemophilia A in the United States

Author(s):

Stacey Fedewa, Amanda B. Payne, Lorraine Cafuir, Duc Quang Tran, Ana G. Antun, Christine Kempton

Publication:

Blood

Date:

Blood

Topics:

Hemophilia, ITI

Race, ethnicity, and immune tolerance induction in hemophilia A in the United States

Author(s):

Christine L. Kempton, Amanda B. Payne, Stacey A. Fedewa

Publication:

Research and Practice in Thrombosis and Haemostasis

Date:

November 2023

Topics:

Hemophilia, ITI

Mortality Trends Among Persons with Hemophilia in the United States, 2000-2021

Author(s):

Amanda B Payne, Binh Le, Meredith A Oakley, Brandi Dupervil, Marilyn J Manco-Johnson, Anjali Sharathkumar, Stacy E Croteau, Rajiv K Pruthi, Skye J Peltier, Norma Wolf, Roshni Kulkarni, Vanessa R Byams

Publication:

64th ASH Annual Meeting and Exposition

Date:

December 10, 2022

Topics:

Mortality, hemophilia

Clinical and Treatment Characteristics of Infants and Toddlers Less Than Two Years of Age with Hemophilia: A Report from the Community Counts Registry

Author(s):

Jennifer Han, Brandi Dupervil, Roshni Kulkarni, Arash Mahajerin, Courtney Thornburg

Publication:

Blood

Date:

November 15, 2022

Topics:

Community Counts, Bleeding Disorders, Infants, Toddlers

Bleeding Disorders in Women and Girls: State of the Science and CDC Collaborative Programs

Author(s):

Vanessa R Byams, Connie H Miller, Fiona M Bethea, Karon Abe, Christopher J Bean, Laura A Schieve

Publication:

Journal of Women’s Health

Date:

April 1, 2022

Topics:

Bleeding Disorders, Hemophilia, Von Willebrand Disease, Surveillance

Occurrence Rates of Inherited Bleeding Disorders Other Than Haemophilia and Von Willebrand Disease Among People Receiving Care in Specialized Treatment Centres in the United States

Author(s):

Connie H Miller, J Michael Soucie, Vanessa R Byams, Amanda B Payne, Karon Abe, Magdalena Lewandowska, Amy D Shapiro

Publication:

Haemophilia

Date:

March 4, 2022

Topics:

Hemophilia, Von Willebrand Disease

Women and Girls with Haemophilia Receiving Care at Specialized Haemophilia Treatment Centres in the United States

Author(s):

Connie H Miller, J Michael Soucie, Vanessa R Byams, Amanda B Payne, Robert F Sidonio Jr, Tyler W Buckner, Christopher J Bean

Publication:

Haemophilia

Date:

September 04, 2021

Topics:

Hemophilia

Characteristics, Complications, and Sites of Bleeding Among Infants and Toddlers Less than 2 Wears of Age with VWD

Author(s):

Brandi Dupervil, Karon Abe, Sarah H O’Brien, Meredith Oakley, Roshni Kulkarni, Courtney D Thornburg, Vanessa R Byams, J Michael Soucie

Publication:

Blood Advances

Date:

April 20, 2021

Topics:

Hemophilia, Von Willebrand Disease

Occurrence Rates of Von Willebrand Disease Among People Receiving Care in Specialized Treatment Centres in the United States

Author(s):

J Michael Soucie, Connie H Miller, Vanessa R Byams, Amanda B Payne, Karon Abe, Robert F Sidonio Jr, Peter A Kouides

Publication:

Haemophilia

Date:

March 29, 2021

Topics:

Hemophilia, Von Willebrand Disease

Public Health Surveillance for the Prevention of Complications of Bleeding and Clotting Disorders (Community Counts)

Author(s):

N/A

Publication:

Re-competed and awarded for Project Period (#1NU27DD000020)

Date:

September 30, 2020 to September 29, 2025

Topics:

Community Counts, Bleeding Disorders

Evaluation of Factors Associated with Prophylaxis Treatment Regimen Among Men with Hemophilia B Participating in the Community Counts Registry from 2014-2018

Author(s):

Fiona Bethea, Christine Kempton, Matthew Hayat

Publication:

ISTH 2020 Virtual Congress

Date:

July 12-14, 2020

Topics:

Prophylaxis, Severe Hemophilia in Males, Hemophilia B

ATHN CV

Community Counts

Race and ethnicity and the success of immune tolerance induction among people with severe haemophilia A in the United States

Defining the Impact of Immune Tolerance Induction on Clinically Relevant Outcomes in a US Cohort

Bleeding disorder of unknown cause & unclassified bleeding disorders at US hemophilia treatment centers

Risk Factors for Joint Bleeding in Severe Hemophilia A and B: Analysis of the Community Counts Longitudinal Surveillance Cohort

Characteristics Associated with the Success of Immune Tolerance Induction among Patients with Severe Hemophilia A in the United States

Race, ethnicity, and immune tolerance induction in hemophilia A in the United States

Mortality Trends Among Persons with Hemophilia in the United States, 2000-2021

Clinical and Treatment Characteristics of Infants and Toddlers Less Than Two Years of Age with Hemophilia: A Report from the Community Counts Registry

Bleeding Disorders in Women and Girls: State of the Science and CDC Collaborative Programs

Occurrence Rates of Inherited Bleeding Disorders Other Than Haemophilia and Von Willebrand Disease Among People Receiving Care in Specialized Treatment Centres in the United States

Women and Girls with Haemophilia Receiving Care at Specialized Haemophilia Treatment Centres in the United States

Characteristics, Complications, and Sites of Bleeding Among Infants and Toddlers Less than 2 Wears of Age with VWD

Occurrence Rates of Von Willebrand Disease Among People Receiving Care in Specialized Treatment Centres in the United States

Public Health Surveillance for the Prevention of Complications of Bleeding and Clotting Disorders (Community Counts)

Evaluation of Factors Associated with Prophylaxis Treatment Regimen Among Men with Hemophilia B Participating in the Community Counts Registry from 2014-2018