Community Counts

Occurrence Rates of Von Willebrand Disease Based on people Receiving Care in Specialized Treatment Centers in the United States

Authors:
Soucie, J., Miller, C., Byams, V., Payne, A., Abe, K., Sidonio, R., Kouides, P.
Publication:
Haemophilia; 27(3):445-453
Date:
May 2021
Topics:
Von Willebrand Disease

Public Health Surveillance for the Prevention of Complications of Bleeding and Clotting Disorders (Community Counts)

Authors:
Publication:
Re-competed and awarded for Project Period (#1NU27DD000020)
Date:
September 30, 2020 to September 29, 2025
Topics:
Community Counts, Bleeding Disorders

Evaluation of Factors Associated with Prophylaxis Treatment Regimen among Men with Hemophilia B Participating in the Community Counts Registry from 2014-2018

Authors:
Bethea, F., Kempton, C., Hayat, M.
Publication:
ISTH 2020
Date:
July 12-14, 2020
Topics:
Hemophilia, Prophylaxis

Evaluation of Factors Associated with Prophylaxis Treatment Regimen among Men with Hemophilia B Participating in the Community Counts Registry from 2014-2018

Authors:
Bethea, F., Kempton, C., Hayat, M.
Publication:
International Society on Thrombosis and Haemostasis (ISTH) 2020 Virtual Congress
Date:
July 11-14, 2020
Topics:
Hemophilia, Prophylaxis

Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres

Authors:
Soucie, J., Miller, C., Dupervil, B., Le, B., Buckner, T.
Publication:
Haemophilia; 26(3):487-493
Date:
May 2020
Topics:
Hemophilia, Males

Potential of the Community Counts registry to characterize rare bleeding disorders

Authors:
Gupta, S., Acharya, S., Roberson, C., Lail, A., Soucie, J., Shapiro, A.
Publication:
Haemophilia; 25(6):1045-105
Date:
November 11, 2019
Topics:
Bleeding Disorders

Epidemiology of Inhibitors in Persons with Severe Hemophilia A in the United States: Analyses of a National Database

Authors:
Sande, CM., Payne, A., Kempton, C., Manco-Johnson, MJ., Sharathkumar, A.
Publication:
American Society of Hematology (ASH), San Diego, CA
Date:
December 1-4, 2018
Topics:
Hemophilia

Evolution of a National Surveillance System for Bleeding Disorders

Authors:
Manco-Johnson, M., Byams, V., Recht, M., Dudley, B., Dupervil, B., Aschman, D., Oakley, M., Kapica, S., Voutis, M., Humes, S., Kulkarni, R., Grant, AM., USHTCN.
Publication:
American Journal of Hematology; Vol 93, Issue 6. e-only article 2018 February 23 doi.org/10/1002/ajh.25076
Date:
February 23, 2018
Topics:
Bleeding Disorders

Characteristics of Males with Hemophilia in the United States Hemophilia Treatment Center Network (USHTCN) with New-Onset Elevated Inhibitor Titers, December 15, 2013-December 31, 2016

Authors:
Manco-Johnson, M., Soucie, JM., Sharathkumar, A., Bethea, F., Kempton, CL., Payne, A., Wang, M., Miller, CH.
Publication:
American Society of Hematology (ASH), Atlanta, GA
Date:
December 9-12, 2017
Topics:
Hemophilia, Inhibitor

Joint Outcomes in United States (U.S.) Hemophilia Patients: A Report of the Community Counts Registry

Authors:
Manco-Johnson, M., Recht, M., Kulkarni, R., Dupervil, B., Byams, V., Dudley, B., Aschman, D., Voutsis, M., Humes, S., Oakley, M.
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
</