ATHNdataset

The Effect of Age at Diagnosis of Type I Von Willebrand Disease on Diagnostic Lab Values: A Pediatric Perspective

Authors:
Sampson, M., Cheng, D., Fargo, J.
Publication:
Haemophilia
Date:
February 3, 2021
Topics:
Von Willebrand Disease

The Effect of Age at Diagnosis of Type I Von Willebrand Disease on Diagnostic Lab Values: A Pediatric Perspective

Authors:
Sampson, M., Cheng, D., Recht, M., Fargo, J.
Publication:
Haemophilia Journal
Date:
February 3, 2021
Topics:
Von Willebrand Disease

Modeling future cost and usage of products to treat haemophilia A for the US Western States region haemophilia treatment centres

Authors:
Stonebraker J., Ducore, J.
Publication:
Haemophilia
Date:
September 4, 2020
Topics:
Hemophila

Hemophilia without prophylaxis: Assessment of joint range of motion and factor activity

Authors:
Wang, M., Recht, M., Iyer, N., Cooper, D., Soucie, J.
Publication:
Research and Practice in Thrombosis and Haemostasis; 4(6):1035-1045
Date:
July 6, 2020
Topics:
Hemophila

A Study of Hemophilia Carrier Clinics in the United States

Authors:
Marshall, A., Recht, M., Sridharan, M., Nichols, W., Ashrani, A., Fischer, K., Miles, M., Riedel, A., Pruthi, R.
Publication:
World Hemophilia Foundation (WFH) Virtual Summit
Date:
June 14-19, 2020
Topics:
Hemophilia, Carriers

A study of dedicated haemophilia carrier clinics in the United States: Prevalence, services offered and barriers to development

Authors:
Marshall, A., Recht, M., Sridharan, M., Nichols, W., Ashrani, A., Fischer, K., Miles, M., Riedel, A., Pruthi, R.
Publication:
World Hemophilia Foundation (WFH) Virtual Summit
Date:
June 14-19, 2020
Topics:
Hemophilia, Carriers

A Cross-Sectional Study of Women and Girls with Congenital Bleeding Disorders: The American Thrombosis and Hemostasis Network (ATHN) Cohort

Authors:
Haley, K., Sidonio, R., Abraham, S., Cheng, D., Recht, M., Roshni, K.
Publication:
Journal of Women’s Health; 29(5): 670–676
Date:
May 2020
Topics:
Bleeding Disorders, Women

All-cause and inhibitor-related mortality in non-severe hemophilia A patients in the United States

Authors:
Lim, M., Cheng, D., Recht, M., Kempton, CL., Key, N.
Publication:
Blood
Date:
November 13, 2019
Topics:
Hemophilia, Mortality

Higher rates of bleeding and use of treatment products among pre-adolescent boys compared to girls with Von Willebrand Disease

Authors:
Abe, K., Dupervil., O’Brien., Oakley., Kulkarni., Gill., Byams, V., Soucie.
Publication:
American Journal of Hematology
Date:
October 29, 2019
Topics:
Von Willebrand Disease

The Effect of Socioeconomic Status and Urbanization on Rates of Self-Infusion and Bleed Rate in Adolescents with Severe Hemophilia

Authors:
Agnew, C., Apollonsky, N., Cheng, D.
Publication:
ATHN Data Summit 2018, Chicago, IL
Date:
October 25-26, 2018