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Bleeding Phenotypes in Inherited Platelet Function Disorders: Insights From the ATHNdataset

Author(s):

Divyaswathi Citla-Sridhar, Jianzhong Hu, Robert F. Sidonio, Jr, Sanjay Ahuja
Publication:
Journal of Pediatric Hematology/Oncology
Date:
May 19, 2026
Topics:
Platelets, rare disorders, ATHNdataset
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Safety and real-world effectiveness of eptacog beta with emicizumab prophylaxis: an interim analysis of the ATHN-16 study

Author(s):

Tammuella Chrisentery-Singleton, Suchitra Acharya, Sanjay Ahuja, Lauren E. Amos, Daniel Bonzo, Meera Chitlur, Miguel Escobar, Ashley Eason, Carol Fedor, Shveta Gupta, Philip Kuriakose, Matthew Manuel, Sonia Nasr, Sharon Pennington, Rajiv K. Pruthi, Michael Recht, Evelyne Sauty, Doris V. Quon, Allison P. Wheeler, Mark Reding
Publication:
Blood VTH Vessels, Thrombosis & Hemostasis
Date:
April 19, 2026
Topics:
ATHN 16, thrombosis, emicizumab, prophylaxis
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Human Leukocyte Antigen Alleles Associated with Inhibitor Development in Severe Hemophilia A: Analysis of the “My Life, Our Future” Hemophilia A Cohort

Author(s):

Sara Contente, Anwar E. Ahmed, Barbara A. Konkle, Jill M. Johnsen, Andrew Frank, Kathleen P. Pratt
Publication:
Journal of Thrombosis and Haemostasis
Date:
February 2026
Topics:
hemophilia, MLOF
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A Retrospective Analysis of the Safety and Effectiveness of Surgery Management with Recombinant Von Willebrand Factor in Children with von Willebrand Disease.

Author(s):

Tammuella Chrisentery-Singleton, Robert F. Sidonio, Angela Weyand, Priscilla Driscoll Shempp, Christine M. Gerber, Jianzhong Hu, Michelle Kirby, Callie Montcrieff, Jorge Caicdeo
Publication:
ASH 2025 Poster
Date:
December 9, 2025
Topics:
Von Willebrand Disease
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Real-world Use of Prophylaxis in People with Non-Severe Hemophilia in the United States: Insights from the ATHN Transcends Study – Hemophilia Natural History Arm – Winner of ASH Abstract Achievement Award!

Author(s):

Fernando F. Corrales-Medina, Nana Ama Afari-Dwamena, Amanda Blair, Shannon L. Carpenter, Clay T. Cohen, Maissaa Janbain, Janice M. Staber, Jonathan Schwartz, Michael Recht, Tammuella Chrisentery-Singleton
Publication:
ASH 2025 Poster
Date:
December 9, 2025
Topics:
Hemophilia, Prophylaxis
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Safety and Effectiveness of Emicizumab in People With Haemophilia A Enrolled in the ATHN 7 Haemophilia Natural History Study

Author(s):

Tyler W. Buckner, Shannon L. Carpenter, Nabil Daoud, Christine L. Kempton, Lucy Lee, Lynn Malec, Thomas W. McLean, Paul Morton, Carrie O’Neill, Janice M. Staber, Michael Wang, Stacy E. Croteau, Michael Recht
Publication:
Haemophilia
Date:
November 11, 2025
Topics:
Haemophilia
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A retrospective analysis of the safety and effectiveness of recombinant von willebrand factor in children with von willebrand disease undergoing surgery

Author(s):

Tammuella Chrisentery-Singleton, Robert F. Sidonio, Angela Weyand, Priscilla Driscoll Shempp, Christine M. Gerber, Jianzhong Hu, Michelle Kirby, Caitlin Montcrieff, and Jorge Caicedo
Publication:
Blood
Date:
November 3, 2025
Topics:
Von Willebrand disease, VWD, pediatric VWD
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Inhibitors and Obesity: The Prevalence and Strength of Association in People With Haemophilia

Author(s):

Lisa Littner, Jianzhong Hu, Matthew Manuel, Christine Gerber, Cristina Tarango
Publication:
Haemophilia
Date:
October 13, 2025
Topics:
Hemophilia, Obesity
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Prevalence and Risk Factors for Venous Thromboembolism in People With Inherited Bleeding Disorders: An ATHNdataset Study

Author(s):

Shreya Agarwal, Joseph R. Stanek, Jianzhong Hu, Tammuella Christentry-Singleton, Vilmarie Rodriguez
Publication:
American Journal of Hematology
Date:
September 27, 2025
Topics:
Venous Thromboembolism, Thrombosis, ATHNdataset
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Characterization of the clinical and laboratory phenotype of hemophilia carriers and trends of utilization of hemostatic therapies: analysis of the American Thrombosis and Hemostasis Network dataset

Author(s):

Neeraja Swaminathan, Alison Currie, Jianzhong Hu, Roshni Kulkarni, Steven Pipe, Peter Kouides, Anjali Sharathkumar
Publication:
Practice in Thrombosis and Haemostasis, Volume 9, Issue 6, 102994
Date:
August 2025
Topics:
ATHNdataset, Hemophilia, Carriers
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Effectiveness of Octocog Alfa (BAY 81-8973) to Treat People With Haemophilia A Enrolled in the ATHNdataset, Including Under-Represented Subgroups

Author(s):

Martin Chandler, Thomas Moulton, Lena Charaf, Jessica Charlet, Michael Recht
Publication:
European Journal of Hematology
Date:
August 6, 2025
Topics:
Hemophilia
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Inhibitor development and clinical characteristics in children with severe hemophilia A in the ATHN 8 US Cohort Study

Author(s):

Courtney D. Thornburg, H. Marijke van den Berg, Martin Chandler, Lynn Malec, Matthew Manuel, Carrie O’Neill, Michael Recht, Elizabeth Taggart, Shannon L. Carpenter for the American Thrombosis and Hemostasis Network (ATHN) 8 investigators study group
Publication:
Blood Vessels, Thrombosis & Hemostasis Journal
Date:
August 1, 2025
Topics:
PUPs, Hemophilia, Inhibitors
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Characterization of the clinical and laboratory phenotype of hemophilia carriers and trends of utilization of hemostatic therapies: Analysis of the American Thrombosis & Hemostasis Network (ATHN) dataset

Author(s):

Neeraja Swaminathan, Alison Currie, Jianzhong Hu, Roshni Kulkarni, Steven Pipe, Peter Kouides, Anjali Sharathkumar
Publication:
Research and Practice in Thrombosis and Haemostasis
Date:
August 1, 2025
Topics:
hemophilia, carriers
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First Data from the American Thrombosis and Hemostasis Network ATHN Transcends: Hemophilia Gene Therapy Outcomes Arm

Author(s):

Ulrike M. Reiss, Nabil Daoud, Annette Von Drygalski, Kenneth Friedman, Andrew Leavitt, Michael Recht, Jonathan Schwartz, Tammuella Chrisentery-Singleton, Janice M. Staber
Publication:
ISTH Poster
Date:
June 21, 2025
Topics:
Hemophilia, Gene Therapy
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DREAM AWARD: Factor-ONE-ing in Surgery: An Assessment and Survey of Perioperative Management for Hereditary Fibrinogenemias across US Hemophilia Treatment Centers

Author(s):

Nicoletta Machin, Yihao Zheng, Margaret Ragni, Craig Seaman, Fredrico Xavier, Tamuella Singleton, Jianzhong Hu, Scott Rothenberger
Publication:
ISTH Poster
Date:
June 21, 2025
Topics:
Rare Disease, Thrombosis
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