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Community Counts

Evaluation of Factors Associated with Extended Half-Life Product Utilization for Men with Hemophilia B Participating in the Community Counts Registry from 2014-2018

Author(s):

Fiona Bethea, Christine Kempton, Matthew Hayat
Publication:
ISTH 2020 Virtual Congress
Date:
July 12-14, 2020
Topics:
EHL Products, Male, Hemophilia
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Hemophilia Without Prophylaxis: Assessment of Joint Range of Motion and Factor Activity

Author(s):

Michael Wang, Michael Recht, Neeraj Iyer, David Cooper, J Michael Soucie
Publication:
Research & Practice in Thrombosis and Haemostasis
Date:
July 6, 2020
Topics:
Routine infusions, Prophylaxis, Hemophilia
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Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres

Author(s):

J Michael Soucie, Connie H Miller, Brandi Dupervil, Binh Le, Tyler Buckner
Publication:
Haemophilia; 26(3):487-493
Date:
May 2020
Topics:
Hemophilia, Males
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Potential of the Community Counts Registry to characterize rare bleeding disorders

Author(s):

Sweta Gupta, Suchitra Acharya, Christopher Roberson, Alice Lail, J Michael Soucie, Amy Shapiro
Publication:
Haemophilia; 25(6):1045-105
Date:
September 11, 2019
Topics:
Bleeding Disorders, Registry, Under-reported, RBDs
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Epidemiology of Inhibitors in Persons with Severe Hemophilia A in the United States: Analyses of a National Database

Author(s):

Christopher M Sande, Amanda B Payne, Christine L Kempton, Marilyn J Manco-Johnson, Anjali Sharathkumar
Publication:
Blood
Date:
November 29, 2018
Topics:
Hemophilia
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Evolution of a National Surveillance System for Bleeding Disorders

Author(s):

Marilyn J Manco-Johnson, Vanessa R Byams, Michael Recht, Becky Dudley, Brandi Dupervil, Diane J Aschman, Meredith Oakley, Suzanne Kapica, Mariam Voutis, Steven Humes, Roshni Kulkarni, Althea M Grant, on behalf of the USHTCN
Publication:
American Journal of Hematology; Vol 93, Issue 6. e-only article 2018 February 23 doi.org/10/1002/ajh.25076
Date:
February 23, 2018
Topics:
Bleeding Disorders
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Characteristics of Males with Hemophilia in the United States Hemophilia Treatment Center Network (USHTCN) with New-Onset Elevated Inhibitor Titers, December 15, 2013-December 31, 2016

Author(s):

Marilyn J Manco-Johnson, J Michael Soucie, Anjali Sharathkumar, Fiona Bethea, Christine L Kempton, Amanda B Payne, Michael Wang, Connie H Miller
Publication:
American Society of Hematology (ASH), Atlanta, GA
Date:
December 9-12, 2017
Topics:
Hemophilia, Inhibitor
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Joint Outcomes in United States (U.S.) Hemophilia Patients: A Report of the Community Counts Registry

Author(s):

Marilyn J Manco-Johnson, Michael Recht, Roshni Kulkarni, Brandi Dupervil, Vanessa R Byams, Becky Dudley, Diane J Aschman, Mariam Voutsis, Steven Humes, Meredith Oakley
Publication:
World Federation of Hemophilia, Orlando, FL
Date:
July 24-28, 2016
Topics:
Community, Hemophilia
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U.S. Surveillance of Prophylaxis Use Among Persons with Hemophilia A Receiving Care at Hemophilia Treatment Centers (HTCs)

Author(s):

Marilyn J Manco-Johnson, Vanessa R Byams, Brandi Cooke, Michael Recht, Diane J Aschman, Becky Dudley, Mariam Voutsis, Meredith Oakley
Publication:
International Society of Thrombosis and Haemostasis (ISTH) 2015 Congress, Toronto, Canada
Date:
June 23, 2015
Topics:
Hemophilia, Prophylaxis
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Community Counts: A US National Surveillance System for Bleeding and Clotting Disorders

Author(s):

Marilyn J Manco-Johnson, Becky Dudley, Meredith Oakley, Michael Recht, Suzanne Kapica, RJ Presley, Vanessa R Byams, Brandi Cooke, Diane J Aschman
Publication:
World Federation of Hemophilia 2014 World Congress, Melbourne, Australia
Date:
May 11-15, 2014
Topics:
Community, Bleeding Disorders
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Community Counts: Preliminary Report of a National Surveillance System for Bleeding and Clotting Disorders

Author(s):

Marilyn J Manco-Johnson, Becky Dudley, Meredith Oakley, Michael Recht, Suzanne Kapica, RJ Presley, Vanessa R Byams, Brandi Cooke, Diane J Aschman
Publication:
Thrombosis and Hemostasis Summit of North America Scientific Meeting, Chicago, IL
Date:
April 10-12, 2014
Topics:
Community, Bleeding Disorders
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Utilizing National Electronic Data Infrastructure to Longitudinally Follow the United States (US) Bleeding Disorders Population

Author(s):

Marilyn J Manco-Johnson, Becky Dudley, Meredith Oakley, Michael Recht, Suzanne Kapica, Vanessa R Byams, Brandi Cooke, Diane J Aschman
Publication:
American Public Health Association Annual Meeting, Boston, MA
Date:
November 4, 2013
Topics:
Bleeding Disorders
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