Rare Disorders | ATHN CV

A Retrospective Analysis of the Safety and Effectiveness of Surgery Management with Recombinant Von Willebrand Factor in Children with von Willebrand Disease.

Author(s):

Tammuella Chrisentery-Singleton, Robert F. Sidonio, Angela Weyand, Priscilla Driscoll Shempp, Christine M. Gerber, Jianzhong Hu, Michelle Kirby, Callie Montcrieff, Jorge Caicdeo

Publication:

ASH 2025 Poster

Date:

December 9, 2025

Topics:

Von Willebrand Disease

Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities for ultra-rare inherited bleeding disorders

Author(s):

Diane Nugent, Suchitra S Acharya, Kimberly J Baumann, Camille Bedrosian, Rebeca Bialas, Kai Brown, Deya Corzo, Amar Haidar, Catherine P M Hayward, Peter Marks, Marzia Menegatti, Margaret E Miller, Kate Nammacher, Roberta Palla, Skye Peltier, Rajiv K Pruthi, Michael Recht, Benny Sørensen, Michael Tarantino, Alisa S Wolberg, Amy D Shapiro

Publication:

Expert Reviews in Hematology

Date:

March 1, 2023

Topics:

Rare Disease, Research

Knowledge and Therapeutic Gaps: A Major Public Health Problem Highlighted in the Rare Coagulation Disorders

Author(s):

Amy Shapiro, J Michael Soucie, Flora Peyvandi, Diane J Aschman, Donna M DiMichele

Publication:

American Journal of Preventive Medicine; (Suppl.4), pg. S324-331.

Date:

December 2011

Topics:

Public Health, Rare Coagulation