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ATHNdataset

Occurrence Rates of Haemophilia Among Males in the United States Based on Surveillance Conducted in Specialized Haemophilia Treatment Centres

Author(s):

John Michael Soucie, Connie H Miller, Brandi Dupervil, Binh Le, Tyler W Buckner
Publication:
Haemophilia
Date:
May 1, 2020
Topics:
Male Population, Rare bleeding disorder
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A Cross-Sectional Study of Women and Girls with Congenital Bleeding Disorders: The American Thrombosis and Hemostasis Network (ATHN) Cohort

Author(s):

Kristina M Haley, Robert F Sidonio Jr, Shirley Abraham, Dunlei Cheng, Michael Recht, Roshni Kulkarni
Publication:
Journal of Women’s Health; 29(5): 670–676
Date:
May 2020
Topics:
Bleeding Disorders, Women
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All-Cause and Inhibitor-Related Mortality in Non-Severe Hemophilia A Patients in the United States

Author(s):

Ming Y Lim, Dunlei Cheng, Michael Recht, Christine Kempton, Nigel S Key
Publication:
Blood
Date:
November 13, 2019
Topics:
Mortality, Non-Severe Hemophilia
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Higher rates of bleeding and use of treatment products among pre-adolescent boys compared to girls with Von Willebrand Disease

Author(s):

Karon Abe, Brandi Dupervil, Sarah H O’Brien., Meredith Oakley, Roshni Kulkarni, Joan Cox Gill, Vanessa Byams, J Michael Soucie
Publication:
American Journal of Hematology
Date:
October 29, 2019
Topics:
Von Willebrand Disease
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The Effect of Socioeconomic Status and Urbanization on Rates of Self-Infusion and Bleed Rate in Adolescents with Severe Hemophilia

Author(s):

Caroline Agnew, N Apollonsky, Dunlei Cheng
Publication:
ATHN Data Summit 2018, Chicago, IL
Date:
October 25-26, 2018
Topics:
Hemophilia, Adolescents
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Opioid Use in Hemophilia Is Under-Reported in the ATHNdataset: A Call to Action

Author(s):

Skye Peltier, Marshall A Mazepa, Shannon F Nelson, Dunlei Cheng, Mark T Reding
Publication:
ATHN Data Summit 2018, Chicago, IL
Date:
October 25-26, 2018
Topics:
Hemophilia, Opioid
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Extended half-life factor concentrate use for patients with moderate and severe hemophilia among U.S. HTCs (PB155)

Author(s):

Stacy Croteau, Dunlei Cheng, AJ Cohen, Christopher E Holmes, Peter A Kouides, Leslie J Raffini, M Silvey, Courtney Thornburg, Allison P Wheeler, Ellis J Neufeld
Publication:
The International Society on Thrombosis and Haemostasis (ISTH) 64th Annual Scientific and Standardization Committee (SSC) meeting, Dublin, Ireland
Date:
July 18-21, 2018
Topics:
Hemophilia, Factor
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The ATHNdataset: A Community Resource for Outcomes Analysis, Public Health Surveillance and Research

Author(s):

Barbara A Konkle, Thomas C Abshire, Diane J Aschman
Publication:
American Journal of Hematology; 87 (Suppl.1), pg. S159-60. Based upon presentation poster at Thrombosis and Hemostasis Summit of North America Scientific Meeting, Chicago IL
Date:
April 29, 2012
Topics:
Public Health, surveillance
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The ATHNdataset: A U.S.-Based Dataset for Outcomes Analysis, Public Health Surveillance and Research

Author(s):

Barbara A Konkle, Thomas C Abshire, Diane J Aschman
Publication:
Haemophilia, 18 (Suppl.1), pg. 27. Based upon presentation poster at the 5th Annual Congress of the European Association of Haemophilia and Allied Disorders, Rome, Italy
Date:
February 22-24, 2012
Topics:
Public Health, surveillance
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Establishing Community-Based Partnerships to Create a Standards-Based Information Infrastructure

Author(s):

Diane J Aschman, Thomas C Abshire, Amy D Shapiro, Jeanne M Lusher, Ann D Forsberg, Roshni Kulkarni
Publication:
American Journal of Preventive Medicine; (Suppl.4), pg. 332-337
Date:
December 2011
Topics:
Community
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A Standards-Based Information Infrastructure for Rare Bleeding and Clotting Disorders

Author(s):

Ann D Forsberg, Lewis H Parker, Julie Thomas, Diane J Aschman
Publication:
American Public Health Association, San Diego, CA
Date:
October 25-29, 2008
Topics:
Database
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Adopting a Standards-Based Information Infrastructure for Rare Disorder Communities

Author(s):

Judith R Baker, Diane J Aschman
Publication:
American Public Health Association,
Date:
October 25-29, 2008
Topics:
Rare Disorders
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American Thrombosis and Hemostasis Network: Expanding Capacity for Electronic Data Management

Author(s):

Diane J Aschman, Jeanne M Lusher, Amy D Shapiro
Publication:
World Federation of Hemophilia, Istanbul, Turkey
Date:
June 1-5, 2008
Topics:
Database
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