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ATHNdataset

Characterization of the clinical and laboratory phenotype of hemophilia carriers and trends of utilization of hemostatic therapies: Analysis of the American Thrombosis & Hemostasis Network (ATHN) dataset

Author(s):

Neeraja Swaminathan, Alison Currie, Jianzhong Hu, Roshni Kulkarni, Steven Pipe, Peter Kouides, Anjali Sharathkumar
Publication:
Research and Practice in Thrombosis and Haemostasis
Date:
August 1, 2025
Topics:
hemophilia, carriers
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The Iron Ladies: Prevalence and Risk Factors of Iron Deficiency in Females With Bleeding Disorders

Author(s):

Meghan McCormick, Jianzhong Hu, Martin Chandler, Matthew Manuel, Tammuella Chrisentery-Singleton, Margaret V. Ragni
Publication:
Haemophilia
Date:
March 18, 2025
Topics:
Bleeding Disorders, Women, Females
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Effectiveness of Damoctocog Alfa Pegol to Treat Patients With Hemophilia A Enrolled in the ATHNdataset

Author(s):

Martin Chandler, Thomas Moulton, Lena Charafi, Jessica Charlet, Michael Recht.
Publication:
European Journal of Haematology
Date:
November 18, 2024
Topics:
Hemophilia A, prophylaxis, ATHNdataset
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Understanding the real-world healthcare resource utilization and costs of severe hemophilia A without inhibitors among adults treated with long-term prophylaxis in the United States by payer type

Author(s):

Sandra Santos, Jarren Santos, David Hinds, Jonathan Schwartz, Joshua Sammon, Ruthel Jarvis Goss, Nabil Daoud, Tammuella Chrisentery-Singleton
Publication:
Academy of Managed Care Pharmacy (ACMP) Nexus 2024
Date:
October 14-17, 2024
Topics:
hemophilia A, inhibitors, prophylaxis, ATHNdataset
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Emicizumab and females with Hemophilia A in the ATHNdataset and prospective ATHN 7 Study

Author(s):

Tammuella Chrisentery-Singleton, Lucy Lee, Paul Morton, Michael Recht
Publication:
ISTH Congress 2024
Date:
June 22-26, 2024
Topics:
emicizumab, hemophilia A, females with hemophilia A, ATHNdataset, ATHN 7
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Risk of Intracranial Hemorrhage in Persons with Hemophilia A in the United States: Real-World Retrospective Cohort Study Using the ATHNdataset

Author(s):

Jianzhong Hu, Martin Chandler, Matthew Manuel, Michael Denne, Bruce Ewenstein, Ali Mokdad, Shah Xing, Michael Recht
Publication:
Journal of Blood Medicine, Volume 15: 15 pages 191-205
Date:
April 24, 2024
Topics:
Hemophilia, Bleeding
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Prevalence of Venous thromboembolism in people with inherited bleeding disorders: real-world data from the ATHNdataset

Author(s):

Shreya Agarwal, Joseph Stanek, Brian Hu, Nabil Daoud, Tammuella Chrisentery-Singleton, Vilmarie Rodriguez
Publication:
World Federation of Hemophilia (WFH) World Congress 2024
Date:
April 21-24, 2024
Topics:
venous thromboembolism, VTE, ATHNdataset
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Real-World Efficacy Data on Adolescent Hemophilia A Patients Transitioning to BAY 81-8973 or BAY 94-9027 in the ATHNdataset

Author(s):

Michael Recht, Jessica Charlet, Thomas Moulton
Publication:
Thrombosis & Hemostasis Summit of North America (THSNA) 2024
Date:
April 4-6, 2024
Topics:
hemophilia A, inhibitors, prophylaxis, ATHNdataset
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Real-World Data on Hemophilia A Patients Transitioning from BAY 81-8973 to BAY 94-9027 and from BAY 14-2222 To BAY 81-8973 and then to BAY 94-9027 in the ATHNdataset

Author(s):

Martin Chandler, Jessica Charlet, Thomas Moulton, Michael Recht
Publication:
Blood
Date:
November 28, 2023
Topics:
ATHNdataset, patients with hemophilia A, BAY 94-9027, BAY 81-8973, BAY 14-2222
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Real-world data on patients with hemophilia A switching to either BAY 94-9027 or BAY 81-8973 from emicizumab using the ATHNdataset

Author(s):

Martin Chandler, Jessica Charlet, Thomas Mounton, Michael Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia A, switching
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Joint range of motion findings among female patients with Hemophilia A from the ATHNdataset

Author(s):

Martin Chandler, Lena Charafi, Thomas Moulton, Michael Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia A, range of motion, joints
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Real-world data on patients with hemophilia A patients with inhibitors switching to either BAY 94-9027 or BAY 81-8973 in the ATHNdataset

Author(s):

Martin Chandler, Jessica Charlet, Thomas Moulton, Michael Recht
Publication:
ISTH 2023 Congress (poster)
Date:
June 24-28, 2023
Topics:
Hemophilia A, inhibitors, switching
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A Retrospective Analysis of the American Thrombosis and Hemostasis Network Dataset Describing Outcomes of Dental Extractions in Persons with Hemophilia

Author(s):

Heather Messenger, Roshni Kulkarni, Michael Recht, and Chunla He
Publication:
Journal of Clinical Medicine
Date:
Februar 24, 2023
Topics:
Hemophilia, Dental Extraction
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Risk of Intracranial Hemorrhage in US Patients with Hemophilia A: Real-world Retrospective Cohort Study using the ATHNdataset

Author(s):

Brian Hu, Martin Chandler, Matthew Manuel, Jorge Caicedo, Michael Denne, Bruce Ewenstein, Ali Mokdad, Shan Xing, Michael Recht
Publication:
Blood
Date:
November 15, 2022
Topics:
Intracranial hemorrhage, hemophilia, ATHNdataset
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Real-World Use of Octocog Alfa and Damoctocog Alfa pegol in Women with Hemophilia A from the ATHNdataset

Author(s):

Martin Chandler, Jessica Charlet, Thomas Moulton, Michael Recht
Publication:
Blood
Date:
November 15, 2022
Topics:
Octocog alfa, damoctocog alfa pegol, women with hemophilia, ATHNdataset
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